“New Normal” words from a sister
The other day when I went to seek assistance at the prisons headquarters I met this amazing woman whose husband had a brain clot and hemorrhage at the same time. She spoke about how afraid she was as he was in a coma for a long time and she was not sure if he would make it. Thank God he did, he was on drugs for a while and he still is. What inspired me was what she said. She has noticed how different he is, his memory, sluggish speech, blurring vision, confusion and at times unstable movements it does not happen everyday but he is different but normal to her. She was telling me their experience with so much pride, joy and power, she however agreed with me that the healing process was tough still is. She used these words “We all accepted that, all what we see is his new normal, never like before but it is normal and we thank God”. I told my brother about my meeting with her and how she was really helpful and shared her story, which made me share mine as well. I had and have accepted myself now I have adopted this phrase “My New Normal”. It might not be perfect, I might forget things, I might forget words when I am talking, I might have auras and tremors, I might wake up in the morning and my body just refuses to move or feels so fatigued that I am not able to handle it, have abrupt migraines or anything else that come with healing. I am functional I work and productive, these is just temporary and my new normal, I take it with pride and it is God’s miracles. I love my New Normal; I reach out to all who have undergone brain surgeries or conditions to take step at a time, healing takes time. It is not easy it is really difficult, you will have days that you cry yourself to sleep, days when you pray so hard, days when you feel like you have to explain yourself because you feel inadequate ( “I should remember you know” such questions), days when you feel tired of people hearing your experiences, days when you feel that people judge you or make you feel like you are so fragile you will break (at times its true at times it is all in your head), days that you just wana go away to be alone and days when you feel you need to be surrounded by all the people you love sometimes time, distance does not allow which is life. All these emotions come at different times without knocking, after all it is the brain that controls the body.
I call on all survivors, family and friends of people with brain tumors, cancers, clot, hemorrhage, believe in God, never stop to pray and consult your doctor. I will be sharing my journey in bits and pieces of the major milestones during the whole period. I am about to celebrate my 1 YEAR ANNIVERSARY in OCTOBER, lets celebrate together all you need to do is share my posts or the story to all survivors and their families, we can actually beat this monster and accept our NEW NORMAL LIFE.
I must say I do like my Neurosurgeon Dr. P.K Wanyoike http://bsr.co.ke/team-members/dr-p-k-wanyoike/, he is the best he played such a major role in my recovery, he did not just remove the tumor, save my hair
🙂 but also walk with me through the whole healing process. When I get scared and I call him, he listens, advices and he always remind me of where we came from and that Bad Unwanted Guest was chased away for good, We Kicked A**.
Thank you Daktari
NB: This is reposted post from facebook